It's 11:03 and I'm exhausted but I know that everyone is waiting for an update and I just can't go to sleep without sharing about his day. Most likely it'll be a blur after tomorrow's 9:30 apt and I don't want to forget anything important for my partners in prayer.
This morning we went to co op and were in a room with probably 70-100 people. Talking people with talking children. Braden literally fell asleep in the middle of it all. Not even two hours after he woke up.
I let him sleep through show and tell, announcements, etc. but finally woke him when it was time to go to class. He was so out of it, it was as if I were waking him in the middle of the night. He told me his eye hurt so I gave him ibu then he went to his class. I was VERY tempted to bring him to preschool with me and let him just sleep but know he would have been so bummed because he was looking forward to his new classes.
When I saw him at snack time (an hour later) he was chipper and back to being 'Braden'....which lasted all through his next class and lunch. After lunch he said his eye hurt again and after consulting a nurse I gave him tylenol.
On the way to the doctor I asked him more about the pain and he said it was a burning pain for a while after the drops but then felt more like "someone pushing on it"....so, pressure.
It was another 2+ hour appointment and his vision was worse than before. Apparently it's been bad every day but somehow I didn't realize that. Today it was 20/100. There wasn't any new infiltration, which is great! On the flip side, there wasn't really improvement either.
I am so concerned about the sleeping that they (finally) decided to do labs on him today. After poking him twice in one arm and not being able to find a vein, they tried the other arm and took EIGHT vials of blood. It took f.o.r.e.v.e.r. The nurse asked him how he was doing (because he wasn't making a peep) and he said (in a normal 'braden' voice) it hurts. That's it. No screaming or crying. He's my hero. And I told him that.
They are pretty convinced that there is nothing systemic going on and that it's all related to his cornea but we want to be sure since he is so tired.
Thank you for your continued prayers!
Friday, September 14, 2012
the day is done.
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3 comments:
I cannot tell you how thankful I am that they are checking into the bloodwork anyway. Two separate things could be going on although I am PRAYING that is not the case! I am sure everything is just catching up with his poor little body, all the road trips, the pain, the med regimen. Y'all hang in there. Praying for good news this morning! Much love~
I know you must be exhausted! I've been praying & will keep on. Also glad they are looking into the blood work even though it may just be that he too is just exhausted from the pain, the trips to the doctors, school starting, etc. Thanks for keeping us updated!
Praying for you and your family! I think about you all the time. You are doing an amazing job, I know seeing specialists and going to Duke all the time must be exhausting. Hang in there!
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